Early-Stadium Chronic Kidney Disease Patients Experiences of Self Management on A Cultural perspective: A Qualitative Study

Authors

DOI:

https://doi.org/10.56294/saludcyt20251141

Keywords:

chronic kidney disease, cultural, perspectives, self-management

Abstract

Background : Self-management is the gold standard of care for early CKD patients which is useful for preventing complications and slowing down the decline in kidney function. The experience of early CKD patients in carrying out self-management is very important to improve the ability, independence and right decision making in carrying out self-management. This study aimed to explore the self-management experience in adults diagnosed early chronic kidney disease in culture perspective of Javanes.
Methods : This study is a qualitative with a phenomenological approach, using semi-structured in-depth interviews with 27 adult patients diagnosed with early stage 1-3 chronic kidney disease. Data were analyzed using thematic analysis with the Colaizzi analysis method.
Results : The results of the analysis reveal the experiences of early chronic kidney disease patients with self-management, consist of 4 main themes: 1) family support in self-management, 2) Care decision making with family, 3) unhealty eating habit, and 4) using traditional medicine in kidney health maintenance. 
Conclusion : The results of the study concluded that the Javanese culture that is in line with self-management in early chronic kidney disease patients is family relationships and traditional medicine. Family relationships in Javanese culture has high philosophical values ​​and supports health care. Traditional medicine is also still the choice of early chronic kidney disease patients with Javanese ethnicity in carrying out self-management. This study recommends the need for nursing interventions that are tailored to the patient's culture by integrating family care practices and traditional medicine to improve self-management in early chronic kidney disease patients.

References

1. Lin MY, Liu MF, Hsu LF, Tsai PS. Effects of self-management on chronic kidney disease: A meta-analysis. Int J Nurs Stud. 2017;74(June):128–37.

2. Moreels T, Van de Velde D, Goethals J, Vanden Wyngaert K, De Baets S, Nagler E, et al. Self-Management Interventions for Facilitating Life Participation for Persons with Kidney Failure A Systematic Review. Clin J Am Soc Nephrol. 2024;19(2):189–201.

3. Peng S, He J, Huang J, Lun L, Zeng J, Zeng S, et al. Self-management interventions for chronic kidney disease: A systematic review and meta-analysis. BMC Nephrol. 2019;20(1).

4. Nguyen NT, Douglas C, Bonner A. Effectiveness of self-management programme in people with chronic kidney disease: A pragmatic randomized controlled trial. Vol. 75, Journal of Advanced Nursing. 2019. 652–664 p.

5. Niu SF, Wu CK, Chuang NC, Yang YB, Chang TH. Early Chronic Kidney Disease Care Programme delays kidney function deterioration in patients with stage I-IIIa chronic kidney disease: An observational cohort study in Taiwan. BMJ Open. 2021 Jan 19;11(1).

6. Osokpo O, Riegel B. Cultural factors influencing self-care by persons with cardiovascular disease: An integrative review. Int J Nurs Stud. 2021 Apr 1;116.

7. Ouyang W wei, Chen H fen, Xu X yi, Zhang X long, Fu L zhe, Tang F, et al. Self-management program for patients with chronic kidney disease (SMP-CKD) in Southern China: protocol for an ambispective cohort study. BMC Nephrol [Internet]. 2022;23(1):1–11. Available from: https://doi.org/10.1186/s12882-022-02700-2

8. Chuang LM, Wu SFV, Lee MC, Lin LJ, Liang SY, Lai PC, et al. The effects of knowledge and self-management of patients with early-stage chronic kidney disease: Self-efficacy is a mediator. Japan J Nurs Sci. 2021;18(2):1–8.

9. Cong Z, Huo M, Jiang X, Yu H. Factors associated with the level of self-management in elderly patients with chronic diseases: a pathway analysis. BMC Geriatr. 2024;24(1):1–11.

10. Jaarsma T, Cameron J, Riegel B, Stromberg A. Factors Related to Self-Care in Heart Failure Patients According to the Middle-Range Theory of Self-Care of Chronic Illness: a Literature Update. Vol. 14, Current Heart Failure Reports. Current Science Inc.; 2017. p. 71–7.

11. Pitoyo AJ, Triwahyudi H. Dinamika Perkembangan Etnis di Indonesia dalam Konteks Persatuan Negara. Populasi. 2018;25(1):64.

12. Izza EL. Faktor-Faktor yang Memengaruhi Perilaku Kepatuhan Diet Penderita DM Suku Jawa Elfa Lailatul Izza. J Penelit Suara Forikes. 2019;10:189–92.

13. Avieli H, Hua Y, Lu H, Dai J, Zhou Y, Zhou W, et al. Supporting the parent-to-child transfer of self-management responsibility for chronic kidney disease: A qualitative study. J Nurs Scholarsh [Internet]. 2023;55(1):191. Available from: https://doi.org/10.1186/s12884-023-05453-4

14. Hartanti RD, Yetti K, Yona S, Martha E, Health P, Program D. Nrimo Ing Pandum As Self Acceptance Towards Chronic Kidney Disease : Phenomenological. 2024;9(June):110–26.

15. Setiawan H, Kurniawan F. Pengobatan tradisional sebuah kajian interaksionisme simbolik. 2017;23:57–66.

16. Adu FA, Poku CA, Adu AP, Owusu LB. The role of social support and self-management on glycemic control of type 2 diabetes mellitus with complications in Ghana: A cross-sectional study. Heal Sci Reports. 2024;7(4).

17. Cui Y, Yang T, Li R, Wang H, Jin S, Liu N, et al. Network structure of family function and self-management in patients with early chronic kidney disease amid the COVID-19 pandemic. Front Public Heal [Internet]. 2023;10(22). Available from: 10.3389/fpubh.2022.1073409

18. Sudarsih S. Pentingnya Penanaman Nilai-Nilai Budaya Lokal dalam Keluarga di Era Global. Endogami J Ilm Kaji Antropol. 2019;3(1):68.

19. Listiowati D, Rejeki S, Nurrahina A. Description of Decision Making Javanese Family in the Face of Danger Signs of Pregnancy. 2020. 203–209 p.

20. Suryadi M. Potret Aktivitas Makan dalam Leksikon Jawa dan Nilai Filosofi. 2019.

21. Dameria C, Bratanata DS. Spiritualitas Makan Bersama: Interkoneksi Sesama Ciptaan dalam Praktik Pemeliharaan Alam. KENOSIS J Kaji Teol. 2021;7(2):245–65.

22. Ariyanti KS, Sariyani MD, Pemayun CIM. Kepercayaan Masyarakat Terhadap Pengobatan Komplementer Akupuntur Di Praktik Perawat Mandiri Latu Usadha Abiansemal Badung. J Ilmu Kesehat MAKIA. 2020;10(2):107–16.

23. Wahyuni NPS. Penyelenggaraan Pengobatan Tradisional di Indonesia. J Yoga Dan Kesehat. 2021;4(2):149.

24. Tsai MY, Huang YC, Cheng BC, Chin CY, Hsu YT, Lee WC. Prevalence and varieties of complementary and alternative medicine usage among individuals with pre-dialysis chronic kidney disease in Taiwan: an investigative cross-sectional analysis. BMC Complement Med Ther [Internet]. 2024;24(1):1–12. Available from: https://doi.org/10.1186/s12906-023-04311-2

25. Safrida A. Bentuk Dan Proses Ritual Komunitas Islam Kejawen Di Kelurahan Kertosari Kecamatan Temanggung. J Pendidik Sosiol. 2017;7(2):1–10.

Downloads

Published

2025-01-01

How to Cite

1.
Dwi Hartanti R, Yetti K, Yona S, Martha E. Early-Stadium Chronic Kidney Disease Patients Experiences of Self Management on A Cultural perspective: A Qualitative Study. Salud, Ciencia y Tecnología [Internet]. 2025 Jan. 1 [cited 2024 Dec. 10];5:1141. Available from: https://sct.ageditor.ar/index.php/sct/article/view/1141